Hello lovely folks,
Finally, a long overdue post! Below are updates on the happenings from the last couple of months. If you are a skip to the end kind of person, there are a few prayer requests at the bottom to check out.
Much of this year has been spent in a renewing phase if you will. Backing away from the chatter of media, social and otherwise, and the unnecessary while decluttering the things that grow to make the heart heavy and mind weary. Replacing old rationalizations with new promise. Honing in on my most vital of necessities... intimacy with Maker and man… love… rest… gratitude. On occasion, the slightest phrases and events temporarily displace me from what is being cultivated, but I find myself more promptly rebounding to the place, the One in which my heart and belief must abide. All the while rediscovering just how beautifully and swiftly gratitude unlocks doors of hope.
Surgery: Surgery went well, and I actually listened to doctors and have been taking it easy these past couple months. Pathology showed cancer in the fluid around the heart and the piece of the pericardium they removed.
PET/CT Scan: In mid-March, I was finally able to get the scan that had to be postponed the previous two months for various reasons. Part of the right lung lit up, but we were grateful the report came back negative for distant metastases and no cancer in the bones.
Fluid: Earlier this year I was blessed to go over two months without any fluid collecting in my chest but have recently been drained a few times. For now, I will continue to be monitored every few weeks via ultrasound and get drained as needed. I would love to again become the anomaly, have all excess fluid stop collecting on my chest and see my doctors once again in awe of what they consider not medically possible in my situation. It's happened before, and I believe it can happen again!
Care Changes: My oncologist of three years took another job, so we used this opportunity to search out additional medical opinions and as a result moved my care to a hospital system in Cleveland. So far we are very happy with this decision and it immediately opened up options and testing we did not have access to previously. Also, they have been flexible to allow me to get more routine blood draws, procedures, etc. done at local facilities not necessarily in their hospital system but that are still covered by my insurance. Win-win!
Tumor Markers: The most recent set of tumor marker testing is super encouraging. In just a few weeks it has gone from 112 to 86!!! The closer we get to zero the better. I am so grateful for everyone's prayers so please keep them coming as we continue to believe for what some say is impossible!
As long as tumor markers continue to decrease, my doctor prefers to avoid chemo which is ok by me. They tell me the liabilities of chemo outweigh the benefits right now. I'm on a hormone inhibitor which has caused some extremely uncomfortable side effects, including added difficulty breathing, and they are switching me to a different medication. There is also a potential clinical trial I may qualify for that we are hoping to get more info on soon, it's been a slow process. In addition, we continue doing our best to boost my immune system naturally. Many, many thanks to those who gave to the fundraiser. We still have some funds which I use for nutritional IV’s (Vitamin C, HCL, etc.) as I can get them.
We choose to celebrate life, every good report and each step forward believing that God continues to work out seemingly setbacks and inconveniences for our good. We are thankful that you have taken the time to read updates and surround us with love, and we would be most grateful for your continued prayers for the following:
- Tumor markers to continue to decrease / a cancer-free body
- The accumulation of excess fluid to cease
- My ability to breathe with ease would increase
- No negative side effects from medication